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Audio System
From: JonCooper
2 Oct 2014 09:04
To: ANT_THOMAS
8 of 48
41224.8
In reply to
41224.7
I mean a PIR will turn a light on suddenly right where she is, and that can (often) trigger a siezure
From: ANT_THOMAS
2 Oct 2014 09:09
To: JonCooper
9 of 48
41224.9
In reply to
41224.8
Ah right, I get it now.
Is she better with "soft-start" dimmed lights which go from 0%-100% gradually? Rather than instant on?
From: JonCooper
2 Oct 2014 09:24
To: ANT_THOMAS
10 of 48
41224.10
In reply to
41224.9
yes, but I didn't know they existed until yesterday - going to look into changing quite a few of ours
From: ANT_THOMAS
2 Oct 2014 09:29
To: JonCooper
11 of 48
41224.11
In reply to
41224.10
You might find a lot of dimmer switches don't work with energy saving bulbs if you use them.
Incandescents and halogens generally work fine. Or you can buy special dimmable LED or CFLs but they start costing quite a lot - but may be worth it in your case.
From: JonCooper
2 Oct 2014 10:03
To: ANT_THOMAS
12 of 48
41224.12
In reply to
41224.11
we were in the hospital yesterday and found a lot of lights that came on quite dim but brightened to full power reasonably quickly (not like energy bulbs that take forever to 'warm up')
I'm going to find out more about them and change a few of ours, see how she gets on with those
currently we have the kids and most people we know trained to tell her before turning on any lights, so she can look away, some lights are never off
From: koswix
2 Oct 2014 13:06
To: Ken (SHIELDSIT)
13 of 48
41224.13
In reply to
41224.1
I've already got this setup, and additionally it can play separate music for different people. Can even have two or more people in one location, each with their own zoned music that doesn't interfere with others in the room.
It's an off the shelf system based around these badboys:
https://www.dropbox.com/s/duyam06nbashome/m.jpg?dl=0
From: fixrman
2 Oct 2014 13:54
To: JonCooper
14 of 48
41224.14
In reply to
41224.6
Quite agreed. I have to say that some of the best medications for it come from the U.K. for which we have been thankful. It is very under-studied and under researched despite being possibly the oldest of afflictions known to man.
It is tough for kids who have E because they are often ostracised by their friends and makes being a kid difficult. Ours had as many as 13 throughout the night starting from just days before being 12 and possibly four through the day. Medically managed, they occur only at night, and medical control had been good up until late August.
Did she ever try a ketogenic diet? There has been a lot of success with that and we were going to do it when she was about 13 or 14 but she was controlled at the time and we were afraid to mess with success, Unfortunately, they tried weaning and breakthroughs brought us back to medications once again.
From: Drew (X3N0PH0N)
2 Oct 2014 15:07
To: Ken (SHIELDSIT)
15 of 48
41224.15
In reply to
41224.1
Hire a minstrel/bard?
From: koswix
2 Oct 2014 15:17
To: Drew (X3N0PH0N)
16 of 48
41224.16
In reply to
41224.15
Do they still make
these
? I used to think that's what people meant when they talked about black & white
minstrels
(I WAS LITTLE, LEAVE ME ALONE!)
:$
:$
:$
From: Drew (X3N0PH0N)
2 Oct 2014 15:34
To: koswix
17 of 48
41224.17
In reply to
41224.16
:D